(Website is currently under construction)
(Click on the logo to go to the SWAN UK website)
SWAN UK is a project run by Genetic Alliance UK offering information and support to families of children with undiagnosed genetic conditions. Life for these families is tough, without a diagnosis they have no idea what the future holds – will their child walk? Talk? Will they have a shorter life expectancy?
Families often also feel extremely isolated, even within the disabled childrens community. Via our increasing number of social events and our ever growing online forums, SWAN UK offers families the chance to make contact with other families who really understand how difficult life can be when your child is undiagnosed.
Working closely with other organisations, services and the genetic research community, SWAN UK also aims to develop and provide high quality information. We have a quarterly newsletter that is sent out to all registered members and our website and social media accounts are updated daily.
If you would like to become a member of SWAN UK or simply would like to find out more about the work we do, why not check out our website www.undiagnosed.org.uk.